ANO5 Alliance

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Author: Paul Cabanillas

  • Let’s boost research on LGMD R12

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    by

    Paul Cabanillas
    in

    Let’s all meet in Paris, the 22nd and 23rd of October! I’m glad to announce the first ANO5 patient community gathering in Paris to meet leading researchers. It’s still time to join us. If you are interested in contributing to boost research on LGMD R12 to find a cure as soon as possible, please, reach…

  • Hope is allowed!

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    by

    Paul Cabanillas
    in

    For the first time, LGMD 2L patients are united all over the globe to advocate for a cure. The technology is available, the researchers in Genethon and Cure Rare Disease are ready to work on it and patients are mobilized to make everything work. We only lack money. Unfortunately, LGMD 2L is a rear disease,…