For the first time, LGMD 2L patients are united all over the globe to advocate for a cure. The technology is available, the researchers in Genethon and Cure Rare Disease are ready to work on it and patients are mobilized to make everything work.

We only lack money. Unfortunately, LGMD 2L is a rear disease, which means that there are only hundreds of patients all over the globe.

But we don’t lose hope. We are determined to move forward step by step, phase by phase to go through all the stages that it’s needed.

We are going to speak to the world saying that this is a fair fight. No one deserves to be in a wheel chair because he’s too tired to walk. No one deserves to stay at home while friends or family are travelling or partying. No one deserves to count on others to prepare meals, clean the house or buying food.

That’s why we created this Website. We are going to create a tremendous hipe, raise awareness and funds, because it can happen to anyone and there’s no right to prevent us from healing when healing could be possible.