Let’s all meet in Paris, the 22nd and 23rd of October!

I’m glad to announce the first ANO5 patient community gathering in Paris to meet leading researchers.

It’s still time to join us. If you are interested in contributing to boost research on LGMD R12 to find a cure as soon as possible, please, reach out to us in our Contact tab.

It will be an incredible moment to share with Hospital Henri Mondor and Genethon researchers.

You’ll discover the new viral vectors that can replace ANO5 defective gene, the stem cells that are used to caracterize the disease, the animal models that are being used and… much more!

Please talk around you and help us make this moment a turning point for the hope we have to find a cure 😉